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  The Gionfriddo Family
Mother-Brenda
Father– Dominic
Daughter-Ashley
Son-Jonathan

The Gionfriddo Family was first introduced to EB when there son Jonathan was born in May of 99 with RDEB. Brenda had searched for support in helping the family learn how to care for Jonathan. She first found an internet mailing list which became her second family. But she wanted something closer to home so she inquired about a CT support group. Finally with the help of Laura Morris a CT support group was formed.