Favorite Sites
Debra of America Debra is a non for profit organization helping families of EB and fighting for a Cure.
EBinfoworld This is a wonderful site that has lots of information about EB made by a wonderful women and terrific mother of a child with RDEB.
Children with EB Meet wonderful children with EB and terrific teens also with EB
Jonathan's EB Zone Meet Jonathan Gionfriddo and read about his story with EB.